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Care Pathway Helps Children with Neurodisability in HSE South

HSE-South-Enable-Ireland-Team-PhotoSince 2012 the HSE South physiotherapy services in Enable Ireland have been rolling out a simple, effective but life-changing care pathway for children with neurodisability. One of these conditions is Cerebral Palsy which affects 2.5  per 1000 births in Ireland and is a group of permanent movement disorders that appear in early childhood.  Enable Ireland is a non-profit, state-funded organisation that provides services to disabled children and adults. Based in fifteen counties around Ireland the organisation aims to provide a wide variety of enabling services.

In Cork a multidisciplinary team are working together in a community setting to prevent one of the most painful and debilitating outcomes of Cerebral Palsy; hip dislocation. The specific need for hip surveillance and management is associated with each child’s abnormal muscle tone and challenges with mobility which causes hip displacement.  The negative impact of hip dislocation on quality of life is felt not only by the child but also by the care giver who is unable to provide adequate care without causing discomfort. This highlights the necessity for the orthopaedic care pathway to include  hip surveillance and management as a critical service.

The team in Cork are now striving to meet the HSE guidelines on specialist supports for children with disabilities, published in 2015. They recognised the lack of standardised intervention and management in assessing the need for specialist services and decided to address it. Standardisation is understood to improve decision-making and in turn results in a structured, integrated management pathway. The orthopaedic care pathway practiced by the team has four steps and focuses on early intervention and timely, effective service provision, without which, surveillance serves little purpose.

Step one is referral for a physical assessment completed jointly with community physiotherapists following training and education which is based on current international guidelines, then x-rays are taken for analysis, third, an individualised service plan is developed and finally the whole team make decisions based on the outcomes of the assessment. A key element of its success is the multidisciplinary team who are engaged in the process and take part in thorough clinical discussions. This team includes Enable Ireland physiotherapists radiologists, orthopaedic surgeons, and  paediatricians working with community teams. The team also has access to paediatric neurologist when required for specific conditions like muscular disorders.

Since its initiation, 600 children have accessed the care pathway which has enabled timely detections and management of possible secondary musculo-skeletal complications. Additionally,  the creation of a database in the Cork and Kerry regions has aided in better provision of care as well as ensuring progress can be tracked. Perhaps most interestingly, this initiative is cost-neutral because it doesn’t require extra staffing. Instead, it utilises the current health care professionals in the region and promotes the standardisation of the care pathway through continual engagement, training of community-based team members and educating families.