Disability Information - Rare Diseases

Information on Disabilities for Families

Disability information for families whose child has been given a diagnosis, and for those who have a concern about a possible diagnosis of a disability.      

Guide to Entitlements for People with Disabilities

Many people with rare disease may experience a form of disability. If this is the case there is useful information on your entitlements through the website HSE Guide of Services for People with a Disability

National Advocacy Service for People with Disabilities

If as a rare disease patient you are having difficulty with any aspect of your care or services, information is available about your right’s and an advocacy service to help you voice these. For more information on this, The National Advocacy Service for People with Disabilities provides an independent, confidential and free, representative advocacy service.

Disability information (PDF, size 179.7 KB)