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Disclaimer for Information, National Rare Diseases Office


Any materials that the National Rare Diseases Office provides are for information purposes only. Advice on the treatment or care of a patient should be obtained through consultation with a doctor who has examined the patient and is familiar with that patient's medical history. The information provided on rare diseases from the National Rare Diseases Office is not a substitute for clinical advice from your doctor about your care or treatment.

While we take every measure to ensure accuracy and integrity of information on our website we can not take responsibility for the content of information provided through external links.