National Rare Diseases Office

Are you a person living with a rare condition?
Are you caring for a family member or someone with a rare condition?
Do you use or need psychological supports?

The National Rare Diseases Office is conducting an online survey to explore the need for psychological supports for people living with rare conditions in Ireland

  • Takes 15 minutes to complete
  • You must be aged 18 or older to participate

To take part go to the Orphanet Ireland website

Any questions?

As part of phase 2 of this project we will be seeking expressions of interest from people who wish to be interviewed. If you would like to participate in phase 2 please email