Welcome
Logout
Skip to main content
our
health
service
Menu
Close
How can we help you?
Home
Services
Health A to Z
Staff and Careers
About Us
Services
In this Section
All Health Services
Latest News
My health my language
COVID-19 resources and translations
Publications and Reports
Urgent and emergency care (TrolleyGAR)
You and Your Health Service
Order HSE resources
Healthcare in Ireland
Most Popular Content
Medical Cards
Births, deaths and marriages
Drugs Payment Scheme
Fair Deal Scheme
European Health Insurance Card (EHIC)
Most Popular Services
GP
GP out of hours
Find a civil registration service
Injury Units
Health A to Z
Staff and Careers
In this Section
Jobs
Online payslips
Training
Staff resources
Staff engagement
PCRS Online
Health Service Excellence Awards 2024
Most Popular Content
Pay
Leave
Benefits and services
Pensions
HR Forms
Most Popular Services
Cycle to Work Scheme
HR and Payroll Self Service
Employee Assistance Programme
Health Service Staff Credit Union
Career Hub
About Us
In this Section
Our Health Service
HSE Structure
National Quality and Patient Safety Directorate
Public Representatives
Non Statutory Sector
FOI Publication Scheme
Most Popular Content
Assisted Decision Making
HSE visual identity guidelines
Clinical Design and Innovation
HR Contacts
Home
All Health Services
Specialist Care
National Rare Diseases Office
National Rare Diseases Office
About NRDO
Care Pathways for Rare Diseases
European Reference Networks (ERNs) for Rare Diseases
NRDO News and Events
NRDO Patients & Families
Orphanet
Rare Disease Information for Healthcare Professionals
Rare Disease Information Service
Rare Disease Publications
EU4Health Joint Action - JARDIN
National Rare Disease Strategy
NRDO News and Events
April 2025 - Rare Disease Education Programme - new eLearning module on HSELand
The National Rare Diseases Office has launched a new “Rare Disease Education Programme” which is now available on HSELand, the HSE online learning platform for healthcare professionals.
February 2025 - Rare Disease Day 2025
28 February 2025 is Rare Disease Day, the rarest day of the year.
February 2025 - Rare Disease Day 2025 - Rare Disease Partnership Conference
To mark Rare Disease Day 2025, the Rare Disease Partnership Conference will take place in the Northern Ireland Parliament Buildings, Stormont on 26 February.
December 2024 - HSE National Rare Diseases Office shortlisted in the Irish Healthcare Awards
The HSE National Rare Diseases Office have been shortlisted in the Irish Healthcare Awards 2024.
March 2024 - NRDO Education and Awareness Programme
The NRDO Education and Awareness Programme continued in March.
March 2024 - Joint Action on Integration of ERNs into National Healthcare Systems - JARDIN
JARDIN’s kick-off meeting is scheduled to take place in Brussels from 6 to 8 March 2024.
February 2024 - RCSI Genetics & Paediatric Society Event to celebrate Rare Disease Day
The RCSI presents their first RCSI Genetics & Paediatric Society Event to celebrate Rare Disease Day on 29 February
February 2024 - Rare Disease Clinical Trials Network Conference
Join global experts, researchers and advocates to explore the forefront of rare disease clinical research on 29 February and 1 March
February 2024 - Rare Disease Day 2024
The countdown is now on to the rarest day of the year! 29 February is Rare Disease Day.
February 2024 - I am Number Seventeen
The goal of the campaign is to increase understanding of what it is like to live with a rare disease - and show that rare isn’t always that rare.
February 2024 - Minister for Health announces development of a new National Rare Disease Strategy
The Minister for Health, Stephen Donnelly has announced the development of a new National Rare Disease Strategy for Ireland.
October 2023 - EURORDIS Re-launch the Access Campaign Survey
Survey re-launched to capture treatment access issues for people with rare diseases - Full details at link.
Friday, 22 September 2023 - Rare Ireland Conference - Athlone
A day filled with information and support for rare families and advocates. With information stands and guest speakers - Full details at link.
Friday, 22 September 2023 - The Irish Society of Human Genetics Annual Conference - Galway
The Irish Society of Human Genetics Annual Conference will take place on Friday 22nd September at the Galmont Hotel & Spa, Galway - Full details at link.
August 2023 - The Rare Disease Clinical Trial Network (RDCTN) News
The Rare Disease Clinical Trial Network (RDCTN) is a Health Research Board (HRB) funded clinical trial network that aims to increase the quantity and quality of clinical trials in rare diseases in Ireland, while ensuring that the patient voice is at the centre of all activities - Follow link for full article.
